Recently, students and staff at Nathaniel Woodhull Elementary School and William Floyd Elementary School hosted spelling bees to support worthwhile causes that are close to the hearts of their extended school families – Epidermolysis Bullosa (EB) and Alzheimer’s – raising more than $5,000 collectively.
Second and third graders at Nathaniel Woodhull Elementary School competed in a Spelling Bee for EB to raise money to help support the Epidermolysis Bullosa Research Partnership (EBRP) and Casey Neikens, a third grader in Kim Vecchio’s class who suffers from EB, a genetic skin disorder which is caused by the lack of a critical protein that binds layers of the skin together causing blistering and wounds that never heal. Altogether, students raised $1,935 to go toward EBRP and to assist the Neikens family, who must make frequent trips to Cincinnati Children’s Hospital for Casey’s treatment.
The top spellers from each class advanced to the Spelling Bee on June 17, with Joseph Rizzo being named Spelling Bee Champion for second grade and Jacob White for third grade. Mrs. Vecchio’s and Mrs. Jennifer Hubert’s classes were also recognized for raising the most money in each grade level.
According to EBRP, people with EB lack a critical protein which keeps the skin from tearing apart, blistering and sheering off. Those with this condition suffer from severe pain, disfigurement, and wounds that never heal. EB affects the body inside and out. Blisters occur all over the body, as well as in the eyes, mouth, esophagus, and other internal organs. It is estimated that EB affects at least one in every 50,000 births. EB is not specific to any ethnicity or gender.
William Floyd Elementary School Spelling Bee to Benefit Alzheimer’s Research and Support
Students at William Floyd Elementary School participated in the second annual “Forget Me Not” Spelling Bee and raised $3,318 to benefit the Alzheimer’s Disease Resource Center in Bay Shore, an organization that supports research to one day find a cure for Alzheimer’s, as well as provide care, support and educational programs for families with loved ones suffering from the disease.
In two years, the spelling bee has raised $6,518. The effort was started by Krista Cusimano, a rising sixth-grader who now attends William Floyd Middle School and who lost her grandfather, Raul “Pa” Vosgerichian, to Alzheimer’s three years ago at the age of 66. Krista’s brother, Jacob, served as the president of the William Floyd Elementary School student council this past school year and spearheaded this year’s event.